ABA Therapy for Autism

Applied Behavior Analysis (ABA) is the application of the principles of learning and motivation from Behavior Analysis, and the procedures and technology derived from those principles, to the solution of problems of social significance. - www.centerforautism.com/

Parent Q&A

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  • Hi friends,

    My 2.5 y/o son was recently diagnosed with ASD. I am starting the journey of looking into ABA providers and understand there can be many issues with availability and quality so would love the communities input if there’s any amazing centers in the east bay I should short list first. Appreciate the recommendations and any comments! 

    Thanks!

    Autistic mom here, with an autistic partner, parenting two autistic kids ages 5 and 8. Welcome to the autistic community <3 

    You didn't say anything in your post about why your family sought out a diagnosis, but I wanted to poke my head up to say that there are many of us in the autistic community who believe ABA isn't helpful because it focuses on changing behaviors rather than teaching skills or solving problems in ways that would allow your child to be healthy, happy, and well-adjusted. 

    What we did as we began to realize our family was autistic (because it is genetic, so odds are very very high that at least one of your child's bio parents is autistic too) was to seek out resources from the adult autistic community. The Autism Self-Advocacy Network has a great book (really more of a long pamphlet) for parents of recently diagnosed kids called Start Here: I've given it to our kids' teachers several years in a row. There are TONS of good resources from autistic OTs, SLPs, and psychologists available online too. I'd get books to read with your kid about autistic kids and families (some of our favorites are Do You Want to Play?, the Little Senses series, Why Johnny Doesn't Flap, and My Autistic Mama) and just normalize talking about how everyone has different kinds of brains and different brains need different things. 

    Happy to chat more and share lots of resources off-line, feel free to PM me. 

    We use 2020 Behavior and the BCBA we got through them is amazing. Only issue is cost as unless you work at a couple very specific tech companies (Google and Uber last I knew), they are going to be out-of-network with potentially a pretty low reimbursement rate (we get ~20%) depending on your insurance. Also filing all the claims, dealing with insurance authorizations is a constant struggle. The quality of care makes it worth it though.

    https://2020behavior.com

    I literally wrote this exact post 6 months ago.

    I have a 3.5 year old who was diagnosed with ASD earlier this year.

    I wholeheartedly recommend Whole Child Psychology.  We have had a para in the classroom since June and it has made a world of difference. Susan Nachand and her team are truly incredibly and my preschool director said it was the best program she has ever seen.  They go to speech to make sure they are bringing in all the skills each week and are truly looking after my kid.

    Note: they are only OOO and we submit their bills to our insurance.  happy to chat more offline.

    Reply now  »
  • Hello BPN parents,

    My daughter, age 11, was recently diagnosed with autism (level 1).  My partner and I are overwhelmed with this diagnosis and the many treatment options.  It's like a full time job to coordinate all of this.  I understand that ABA is the treatment of choice, and we have been referred to various specialists, but none of them accept insurance!  Any recommendations for ABA therapists or organizations in Moraga, who accept insurance?  

    We have also heard that ABA can be very structured - is there any alternative approach?  

    Thank you for your advice as we start this journey.

    Hi! We are six years into the journey. My son has autism. And I actually run support groups for Parents of neurodivergent children. Lets connect! 

    Hi,

    My daughter was diagnosed last year, at age 11 as well. It is a lot to process, so please take it easy on yourself as well at this time. We decided to do an ABA social skills group through BIA in Oakland (they were in Emeryville but switched locations this year). My daughter has benefited so much from this group and they have provided us with parent training as well. I can't say enough good things about the program, it is very skill-based and they really tailor the goals for each individual child. For us, it is well worth the drive from Martinez twice per week. We have Kaiser and they accepted it. https://www.bia4autism.org/ I don't know of any providers in the Moraga area specifically, but wanted to mention BIA as they have been so instrumental in my daughter's treatment. 

    Hi! It's so great that you wanna support your kid and are reaching out for ideas. You'll likely hear this from others: please slow down, take some time, and do some deeper investigating before you rush into anything! (You might think of it as an autism moon;) Feeling frantic and rushing into millions of recommended therapies will probably just add stress for you and your kid. You already know your kid, they are the same kid you already know, you just now have a new lens through which to understand them. 

    Fortunately, there are lots of awesome, neurodiversity-affirming resources out there, some of which are from autistic adults who want to share their lived wisdom with parents. I'll list a few I've really liked below, as an allistic (non-autistic) parent of an (also 11-year-old!) autistic++ kid. 

    Unfortunately, the medical model of autism is very different, and sounds like what you've been pointed towards. I don't have any experience with ABA, or any behavioral therapies (including social skills groups), because I have never felt there was any need for that for my child. FYI, ABA has become rather controversial... I know that contemporary ABA claims to be very different than older models, which were typically very abusive (i.e. trying to force people to stop stimming). It is now supposed to be much more client-centered and focused on family goals, but some folks (and many autistic adults) dispute that and say to proceed w/caution or simply avoid anything that's focused on "behavior." 

    The neurodiversity-affirming way to understand autism is simply as a different neurotype--one that has some pretty great qualities, and also brings with it challenges, since the world at large operates on a neurotypical model. That friction can range from uncomfortable to debilitating. The thing to do is to get a deeper grasp on where the friction is for your particular kid. Do they have other diagnoses that you're thinking about? Where are their greatest support needs? 

    The things to be "treated" or cared for, or supported, are the areas that are hard, not autism itself. I would be cautious about any approach that seems to be trying to somehow lessen one's autistic nature rather than figuring out how the autistic kid can be more at ease in the world.

    For example, my kid lives with a lot of anxiety, has a need for reliable routines, and has sensory sensitivities. So, we try to work with him on anxiety and figure out together what helps him the most with that. We also try to never take him by surprise with plans; we plant seeds ahead, we involve him in how to make a situation more manageable, he knows he can retreat and find a cozy spot to decompress, and we simply avoid certain things that would be too much. If we're at home in the evening and he feels fatigued or like there are too many demands, he might stop speaking for a while; no biggie, we use a whiteboard or paper and pencil to exchange notes! Once he feels chilled out, he returns to speaking. He is becoming SO self-aware through all this, the idea being that he is learning to modulate and take great care of himself, and will one day do that on his own.

    Meantime, a couple resources...

    Tilt Parenting, community and podcast. Search podcast for topics, lots of good recent ones about autism: https://tiltparenting.com/

    The Neurodiversity Podcast: https://neurodiversitypodcast.com/

    The Autistic Culture podcast, playful deep dives: https://podcasts.apple.com/us/podcast/the-autistic-culture-podcast/id1653171456 

    Facebook Group, highly recommend searching previous posts for topics of concern: "Ask Autistic Adults, A Resource for Parents of Autistics": https://www.facebook.com/groups/askautisticadults/

    Neurowild, a speech language pathologist who is an illustrator and autistic ADHDer: https://www.instagram.com/neurowild_/

    Neurotribes book by Steve Silberman

    Unmasking Autism by Devon Price (haven't read this one yet but heard good things, it's brand new)

    Uniquely Human by Barry Prizant 

    I Will Die on This Hill by Ashburn/Edwards (this one is intense and more political, but also has some solid pointers on the autism moon concept, lots of personal stories, and just frames the whole conversation so differently, could be helpful)

    AUTISTIC GIRLS: look for neurodiversity-affirming books and podcasts specifically about this population! (I'm not well versed but I know the neurotype tends to show up differently due to socialization differences)

    Take care and feel free to reach out if you want to chat :)

    How helpful for your child that you've received a diagnosis and can use it to inform your decisions as their parents. Of course it's a lot, and hopefully you can remember your child remains the same person they have been all their life -- but what has changed is that you now have a tool to help get them the supports they need. Easier said than done, of course. It is genuinely a full time job -- and it is exhausting. Have you begun the process of requesting an individualized education plan (IEP) from your school district? This will help you connect to services through their school and other public entitlements. It is important to remember that your child is entitled to accessible education


    My expertise is as a parent of an 11 year old non-binary (but female presenting) child, as well as my graduate training in both public health and medical anthropology -- I know a lot about health institutions, structural inequities, and health advocacy. 

    I'd encourage you to look at the Autistic Self-Advocacy Network (ASAN) to begin with -- it's an organization that focuses on autistic people's self-advocacy, which is important for all people to know how to do regardless of their neurodivergence. Your child is not old enough to self-advocate, though they can start to develop those skills. You are their advocate and that's a lot to bear.  ASAN and other autistic-run organizations do not recommend ABA for reasons that seem quite uncontroversial -- it takes the perspective of fixing or re-training your child. ABA does not acknowledge or make space for the very harmful practices and forms of pathologizing that institutions and individuals inflict on autistic people. 

    Here are some resources that have helped me -- even though the work and the fights are still huge, it is really good to have one's kid's interests validated across many different experts, and sadly ABA and schools are not actually those experts:

    Eliza Fricker's work is amazing -- both her books and her podcast

    Uniquely Human podcast

    Autistic Girls Network (based in UK) 

    I have really valued Whole Child Support services, they have psychotherapy as well as well-vetted specialists -- many don't take insurance but can provide superbills for reimbursement (more work, yes, but this is a big problem we face in the US without nationalized health care, a problem bigger than any of us!). They do use diagnostic codes for ABA because that is how insurance reimburses for autism support services, but they are not advocates of the ABA method to fix your kid...whatever 'fix' means. 

    DREDF has templates for submitting your request for an IEP assessment through the school district (I linked to their site on K-12 education, as I have had trouble navigating all their wealth of resources, in the past)

    Feel free to email me directly with questions. 

  • Hello, I have a 3 year old son who was recently diagnosed as being on the autistic spectrum. He is high functioning and high IQ (at 133). He is reading and writing at a 6 or 7 year old level, and seems to display an affinity for languages.

    However, he is lacking eye contact, and his social skills are at half of his age, like those of a 1.5 year old. He often replies with scripts from books or YouTube videos. We have noticed improvements already with some of the basic work that we have been doing (like encouraging imaginative play with his stuffed animals, and encouraging him to provide context about the book or video he is scripting from) but we think he will still benefit from some type of intervention. 

    The Regional Center suggested ABA therapy as one potential option, as well as the local school district in Oakland. I've read a lot of polarizing positions on ABA therapy, and would be interested in hearing about others' experiences with ABA, both positive and negative.

    What do you wish you knew before you began working with an ABA therapist?

    What questions should someone like me be asking while searching for a therapist?

    What questions should I be asking when interviewing a potential therapist?

    Any suggestions for this newbie to the ASD world will be greatly appreciated.

    -Dan

    Hello! I would highly recommend the book "Uniquely Human" by Dr. Barry Prizant. It is a beautiful book that looks to the positives of neurodiversity instead of the common view that there is something that needs fixing/changing. I would also highly recommend looking up Greg Santucci, OT on Facebook, as he also has a beautiful and positive take on working with neurodiverse kiddos.  I follow the hashtag #actuallyautistic on Instagram, for some reallllly great (and often difficult) personal views of how ABA was perceived by autistic individuals in the community. (It's rarely positive, I'm afraid.) Here are a few great websites: https://www.theexpertally.com/https://www.nicolefilipponeauthor.com/ , & https://autismsupermomsmagazine.com/blog/ . Lastly, I discovered a wonderful advocate in the Bay Area named Maisie Soetantyo who has a lot of information on both Instagram/Facebook, as well as a organization that she runs to help young autistic adults with finding meaningful work, called Autism Career Pathways. She's super responsive to questions from parents! I'm am a mom to a recently diagnosed 7 yr old son, and would be more than happy to talk with you about my own experience (navigating OT/PT/Talk therapy/Kaiser/schooling, etc., if you're interested. Every kid and path is unique. The most important advice I can give is to trust your parenting instincts. YOU are the expert, and true support works with the knowledge that parents know their kids better than anyone. Best of luck. :)

    Hi Dan, 

    Your child has some great strengths and it's good to be mindful about services would best benefit his needs. My child was very similar to yours at that age. Social skills and adaptability were our challenges. The path we chose was a combination of ABA and social skills groups. There is a lot of data and opinions about ABA. It's best to see for yourself and your son if it'll be a good fit for him and your family. I found that the application of ABA from providers worked best for us if it was more naturalistic in style.

    You'll find that ABA companies are different - the turnover rates for direct staff are high. Most likely there'll be a clinical supervisor (BCBA) who will oversee a behavioral technician (this person will work the most with your child). Look for someone who is able to engage well with your child, in a style that is comfortable for him and your family. Communication is key - know what your boundaries are, but try to keep an open mind to potential interventions. I've found most staff were willing to work with me about suggestions for my child. We had sessions not only at our home but outside in the community (parks, play-dates) to promote skills. There will always be staff that you like more and some you don't. It's not uncommon to request for another staff for a better fit (just know, it might be a wait).

    You mentioned your school district may have options. That's also a good place to start. My kid did a combination of school services (preschool/ABA) and private ABA, and eventually social skills groups. It made for long days, but we saw much growth. You can always ask to tour the potential classroom to see what it is like (this was certainly available pre-Covid). Join your local SELPA - there should be special education resources for your district. Get to know other families at your school and/or in your area. They are always the best to get local information from - classrooms, ABA companies, special needs friendly places, etc.

    All the best to you - our kids will make progress in their own time and it's amazing to see.

    I am a parent and a school psychologist.  I always recommend that parents access ABA Therapy as early as they can.  It is most effective early and it does really seem to help.  I can't think of a downside.  I believe it can be hard to find ABA therapists.  You may not have so many choices.

    As for suggestions for ASD newbies, I would start by limiting screen time and playing 1:1 with your child.  Do all the usual fun stuff with them.  If he is rigid, prep him ahead of time for what is likely to happen.  He is likely to ask you a lot of questions, answer as best you can.  You can write your own social stories for him, or find relevant ones online.  Social stories help explain social expectations in a kid-friendly way.

    Typically kids like this do very well in school because they like the structure and rules.  Learning comes easily to them.  The real challenge is with social functioning.  I would try to encourage him to socialize with peers around shared interests.  He won't have many peers who will be able to read, of course, but maybe he enjoys trucks, dinosaurs, or playing in the mud?  As much as you can, treat him as a regular kid.

    --Silvia

    I’m not sure if it is available here, but my sister is a speech therapist who works withASD children using play therapy (in NJ. )

    Hi Dan,

    I'm an adult who learned I am autistic as an adult, so I haven't been through ABA myself. 

    But, what I can say is, the best advice is to listen to autistic adults talk about their experiences. There are some good books on this (this is the recommendations list from an online book club for autistic people that I'm in List) and social media is great (#actuallyautistic, Ask Autistic Adults on Facebook, etc). https://www.auteach.com is run by autistic adults with professional backgrounds in helping autistic kids, and has a great tiktok, YouTube, and some consulting services on finding the right therapies and help for your kid. Also, I have learned a TON supporting my probably autistic toddler and myself from following pediatric OT's on social media. They have great advice on sensory stuff, and how to help autistic kids learn to regulate.

    I beleive, strongly, from listening to other autistic adults who went through ABA, that it is harmful. Looking or acting not-autistic is a soul crushing goal for autistic people. Your kid can have an awesome life. The most important thing is to support them for who they are, and knowing and loving that who they are is autistic. They will never be "cured" or "normal again". Being autistic is just being a person with a different kind of brain.

    We have been very pleased with our ABA experience for my son. He began working with a BCBA and Behavior Tech from Kadiant ( https://kadiant.com/) when he had just turned 3 years old and is fading out ABA services as he has improved his skills so much that he doesn't need it now at 5 years old. The ABA sessions are fun and my son looks forward to seeing his BT and BCBA, who are a big part of his (and our) support system for his parenting. When they work with my son at home, they'll play games or take turns choosing different activities together, but all along, they are working on different skills with him like taking turns, expressing his needs, or recognizing when he is in the "red zone" so he can practice regulation skills. Once a month or more, we meet with them to go over his progress in specific skills and come up with new goals together so we can be working with him at home, too. His BT attended preschool with my son for half days and while there, she prompted him about various social skills while on the playground or gently supported him when he had a meltdown. I had the same concerns as you, but once I was able to observe ABA for myself, my fears were alleviated. I think it is important to ask how much experience the Behavior Tech and the BCBA that will be assigned to your child has. Other than that, we found that the most helpful thing to do was to observe any BT the company sent out to us and see if they were a good fit and we liked the way they interacted with our son. We observed two that were not so great but were assigned to one that is wonderful and we have been lucky enough that she has stayed with my son for the past two years. Feel free to contact me if you have any questions.

  • Hello

    My 2 year old daughters are currently receiving ABA services, but we are not too happy with our current company and wanted to see if anybody can recommend a good and reliable ABA company that has experienced Behavioral Therapists in the east bay?

    Hi, We use Kadiant and have been very happy with them. 

    We have used BIA (Behavioral Intervention Associates) in Emeryville for almost 3 years and have been happy with them.

  • My 10-year-old daughter was just diagnosed with Autism. She has a profile called Pathological Demand Avoidance, which means that her anxiety results in her desire to control things, making her resistant to everyday tasks. One of the ways this has manifested is in becoming avoidant of therapy. She claims this is because therapy uses time that she could spend doing other things, and it's true that she has less time for a variety of things that she enjoys such as drawing, reading, spending time with our animals, gaming, and social media. She has had success with theater, which COVID interfered with, but we are hoping to get her started back up in that.

    The therapist that diagnosed her with autism is going to be recommending 10 hours of in-home ABA. She is already doing OT and a a social skills group (she is also receiving psychiatric care and is on medication), which uses 2 afternoons per week and it is hard to imagine adding another 10 hours per week to her schedule. She's already fighting her participation in the other therapies. To add to my confusion, I have found a large community of adults with autism that have a lot of negative things to say about their ABA experience as a child, which I am worried will be my daughter's experience. 

    When I look at goals/outcomes of ABA for high functioning people, I see that they are exactly what we feel she needs:  Showing more interest in people around them, communicating more effectively, reducing outbursts, reducing self-harming behaviors, and improving focus for non-preferred activities. For her the disconnect is that she already understands these things in theory, but only sometimes demonstrates them.

    Does anyone else have a child that fits this profile? Have you done ABA and what was your outcome? Thank you!

    My son has been doing ABA for some years (he's now 17) and in my experience it has both benefits and downsides. We did it years ago and its main benefit was to provide a 1:1 during an after-school programs and it was good for that. This time, with care and learning to pay attention to my 'gut', it has been a net very-positive. I'll list the up- & downsides and the solutions that worked for us. 

    Downsides:

    The number of hours they want. We negotiated fewer hours, citing quality-of-life. Since the shutdown we've been doing 1-hour online sessions 3x/week (split between working on a Goal and playing games like hangman) which beats the heck out of a person in our house (or backyard with masks) for 3-4 hours. The other days he attends 2-hour social skills and "Fun Friday" groups which he *really* likes.

    The super-behavioralist BF Skinner approach. I've found that the more skilled the therapist, the less they hew strictly to that (and sometimes the best ones cycle out of ABA entirely...). We started out with multiple therapists, under the guise of being flexible with the Agency's scheduling, and were able then to weed out the less-effective. "Effective" should look like your child having fun, and if the chemistry is off, then don't feel inhibited to request a speedy change. There were times I waited too long.

    Upsides:

    Being able to do it virtually for 1-2 hours since the shutdown. I ain't going back.

    Improved social skills and (therefore) much greater confidence. A sense of social connection through the group sessions.

    He is SO much less anxious than he used to be, and I credit ABA with some of that. His current therapist is really, really awesome.

    +++++

    The Agency we're with right now is CSD, through Kaiser. They should meet your child where she is, go slow and make it fun. They do lots of games and share online movie clips, etc. Your child's voice is paramount, her buy-in essential (as you know).  Learning how to express her needs is a pragmatic skill that could be an ABA goal, btw. You can always try it, and stop if it's not working. 

    :-)

    You have my sympathy for this struggle with your ASD daughter.

    Our son (now 32) is ASDm and I can tell you what worked for him. 

    We were fortunate to have a shadow-aide for him in 8th grade who was a credentialed special ed teacher in another state, awaiting her CA certification.

    This aide made a deal with our son:  stay on task for one hour, and you can have one hour free to do what you want to do, He then negotiated:  Can I save up four hours of free time in a block?  Yes, but what will you do with it?  Go to the library!

    Amazingly, it worked.  For the first time he was writing coherent essays in class.  And today he works in a library.

    So, my advice to you:

    1. Above all, trust your instincts about what will and will not work with your child.

    2. Can you get another person to direct the ABA who is not you?

    3. Make a deal with your child - one hour doing "work" and one hour free.

    That said, autistic author and professor Temple Grandin Ph.D. says that as an adult she is grateful that her parents insisted that she learn good manners, hygiene,  and grooming.

    If you are starting to lose your patience, back off. The child will remember the fights for years after the reasons why the fights started have been forgotten.

    Be kind and loving.  Appreciate the things that your child loves to do, and support her in being able to do those things.

    Wishing you the best!

    Oakland Mom

    I was trained as an ABA therapist, and did it for a year with younger children. The challenge with it is that it is very adult directed, and the child doesn't have much (if any) ownership in the more classical versions of ABA. My work took place in the context of a language-enriched preschool classroom, and I think by and large the children got more out of the "usual" preschool activities with a one-on-one focus than they did with the ABA. There are other, more modern therapies that allow the children somewhat more autonomy. Doing theater seems like another way of getting at the same issues of responding to others. If you could find a ABA therapist who is willing to meet your daughter where she is at, and do a more play-based curriculum that could be positive. (My sister, who is on the East Coast, and is a Speech and Language Therapist, does play-based, language-intensive therapy with autistic children.)

    Can you share the name of the therapist that diagnosed your daughter's autism?   I have an adult relative, undiagnosed, who shares these same traits and would love a referral to a diagnostician.  lYou can respond to me publically or proivately as you wish.  Thank you!

    OP here. Thank you so much for your thoughtful responses so far. I have also posed this question to some facebook groups that I have joined and all of the answers are really helping give us direction and different things to consider. I am so grateful to live in an area in which people are willing to share their experience to contribute to the betterment of others.

    To Kay S: I'll send this to your privately, but I also thought this might be useful for others to read.

    -I highly recommend the book Women and Girls with Autism Spectrum Disorder: Understanding Life Experiences from Early Childhood to Old Age Book by Sarah Hendrickx. She herself, despite a great deal of professional knowledge in the field, was not diagnosed until she was an adult. Reading this was the first time that I really started to see that it was autism that helped me "see" my daughter through the lens of autism. 

    -Look into Pathological Demand Avoidance, which is a "profile" of some people on the spectrum and is used in Europe, but not here. A general internet search will get you an overview and there are a number of youtubers that are doing videos about it.

    -As far as getting a diagnosis, my daughter was diagnosed by Uvaldo Palomares, who you could find on a web search. We are happy with the assessment, but  honestly don't much about him. We were connected to him through our insurance. I would recommend contacting Lisa Greenberg, who I know is equipped to handle nuanced cases and adults.

  • ABA Agencies for 3YO

    Oct 25, 2019

    Hi All,

    Our 3.5 year old son was just diagnosed with ASD and was recommended ABA therapy by his doctor. The two providers that our insurance covers and have in school ABA services are Juvo and STE consultants. Does anyone have experience with either one of them? 

    We used STE consultants to help us with our child who also has ASD. They did a thorough assessment for us when we needed more answers about behavior. I found them to be warm, professional, thorough and knowledgeable. I recommend them.

    Hi, We use Kids Overcoming Inc., which is now called Radiant I believe.  Also, you should check into Positive Pathways.  Email me if you'd like to connect about other resources: 

    kdLeestma [at] gmail.com

    I know the rollercoaster this can be to set up services. 

    Blessings, -Katie

  • Which insurance companies allow you to have your ABA therapy BT support your child in elementary school? I have Sutter Select/Optum and they will not allow my child’s BT to support him in Kindergarten. I’m thinking about switching to my husband’s insurance, but he has some choices: Kaiser, Blue Cross/Blue Shield, Aetna. Any of these or others that will cover grade school support?

    I have two kids with autism currently in public schools and who previously attended private schools.You don’t mention if your child is in K in public or private school.  My understanding is that, even if an insurance company would pay for ABA in school, no local public school districts (I specifically researched BUSD, OUSD and WCCUSD) would allow a non-district employee to be an aide because of liability reasons. I have heard that some private schools will allow parents to bring in their own aide.

    In summary, if your child is in public school and you are adamant their aide comes from your ABA provider, you could talk to an special education attorney and look at your (probably unsuccessful) legal options. If your child is in private school, and the school will allow you to bring in your own aide, I would first consider fighting your insurance company before switching insurance. Your current insurer should be open to providing ABA in both home and community settings (which include school, outings, classes, etc.). The Mental Health and Autism Insurance Project is fantastic. They can probably advise you on this further. Hope this is helpful to you and other parents in a similar situation.

    I believe Kaiser does! 

    Kaiser is not a good option for behavioral health support, especially if you're looking for flexibility. In fact their behavioral health clinicians are gearing up for another strike for adequate staffing and realistic caseloads.

  • Hi parents, has anyone had experiences with Milestones in providing ABA services to their children with ASD? 

    Can any of you recommend an organization that you had a good experience with?

    Thanks

    Hi! I don’t have any direct experience with that organization but a great resource is a Facebook group called East Bay Autism Parents. I think that you will find some folks with info that you can use!

  • ABA Professionals East Bay

    Nov 8, 2018

    Hi All,

    My 2.5 year old twins were diagnosed with Autism.  We are looking for great ABA professionals in the East Bay.  If you have anyone you love or that I should avoid.

    Thanks in advance!

    We had the best experience with BIA out of Emeryville. They are extremely experienced and have a good team 

    Hope this helps. 

  • I was wondering if anyone had any experience with All Better Together ABA services located in Walnut Creek? I was struggling to find ABA services for my high-functioning autistic daughter in our Albany area; it seems that many places, like STE consultants, are booked full. Also, any comments regarding ABA in-preschool vs. in-home for a 3 year old? She attends a private language immersion preschool, and I wasn't sure if there may be pushback from the teachers regarding having an outside ABA therapist at her school at such a regular basis. Thank you!

    Hi, I can't comment on ABT (we are in the same boat trying to find a new ABA provider), but I do have some experience convincing a school site to allow ABA to provide services on site.  In our case it came down to addressing two concerns: liability and intrusion into the school program.  Once we had a conversation and assured the administrator that the ABA therapist would simply facilitate participation and would not disrupt the school activities, and signed an MOU releasing any liability, there were happy to have the extra support. 

    We are in the midst of finding an ABA through BHPN (subcontracted through Kaiser). Our little 12 kid pre-school is jumping with joy to have an ABA join them and support our almost 4 year old daughter, especially during group activities.

    Hi there, we loved BIA out of Emeryville. We used their services about 10 years ago and our son is now mainstreamed. I know they still provide services, not sure if they have availability. But they are definitely worth the call and or wait. 

    The agency we used was BIA for my son with high-functioning ASD. Don’t know if they have any openings, but they were great. My son attended a private preschool at the time of diagnosis. His ABA program consisted of both home activities and support in community settings (such as preschool, music classes, etc.). It was ideal for a high-functioning kid like him to have aide support while navigating his preschool class of typically developing peers. His preschool welcomed his aide. If they had not, I feel so strongly that the aide presence was so useful that I would have changed preschools without hesitation. There are many preschools in the Berkeley/Albany area that accept aides. Your ABA provider could probably let you know the schools they’ve had clients at as a starting point, if needed.

    Hello! I don’t have experience with the ABA company you mentioned but have experience with ABA therapy in a school setting. My daughter is currently enrolled in a private language immersion school and has her ABA therapist with her during the day to help with transitions, circle time, and group activities. The school has had no issues with this arrangement. I actually think they appreciate the additional support. 

    Thank you everyone! Very helpful feedback and I so much appreciate it.

    I did contact BIA as well, and they said that they are at capacity for Albany area right now - but to try back later. If anyone knows of any others, I'd appreciate possible leads!

  • My son is 22 months old. He has been assessed severe language delay and shows restrictive interest and repetitive behaviors in lots of daily activities. He also has limited eye contact and joint attention when we try to teach him new ways to play toys. We are currently going through ASD screening for him, and the doctor says he does have signs of ASD, although final results haven't come out. We have contacted East Bay Regional Center but the waiting time is excessive. It requires 45 days to simply schedule evaluation and even more time to start any actual treatment.

    I've read lots of books/online resources and understand the importance of getting started early. We want to at least try a few early intervention programs as soon as possible, before the regional center therapy kicks in.

    Appreciate any recommendations for good early intervention providers. They can be private or public, and we are flexible with insurance. We live in El Cerrito, open to East Bay, Marin, and SF. 

    Thanks for the help!

    Hi there! I'm new to the East Bay, but have been working with a phenomenal speech therapist in San Francisco for several years (my kiddo has autism, diagnosed at 3.5 years) -- Bay Area Speech Studio, https://www.bayareaspeechstudio.com. Amanda Root is the owner, but she has built a fantastic team of therapists (We currently work with Alli).

    We started with Amanda before he was officially diagnosed, or approved for any services, because like you I felt the urgency to get things moving. She does work with a variety of insurance providers though, and can likely accommodate if/when your insurance approves services.

    Lastly, it's been my experience that the waitlists are epic. It's not as bad here in the Bay Area, but not great either. Keep at it. You've got this! And, if you need anything at all, even an ear to rant to, feel free to reach out.

    A developmental pediatrician or psychologist can administer the ADOS (gold standard of testing) and diagnose ASD. If you can afford it, I’d suggest making your own appointment (it’s what what we did for my two kids, who both have ASD). We were impressed with the two providers we used for them, Autism Center of Northern CA in SF and Dr. Renee Wachtel in San Leandro. Good luck.

    Autism Center of Northern California (ACNC) in SF is a helpful resource http://www.acnc.org/. They have both assessment and intervention resources. The Massie clinic at UC Davis might also be helpful.  http://www.ucdmc.ucdavis.edu/mindinstitute/clinic/index.html

    Hi Jane! Since you live in El Cerrito, you are able to get services through the school district. The district has a birth to three program called L.I.F.T. at 7140 Gladys Avenue that provides services for children who are delayed. Please check them out: https://www.wccusd.net/domain/109

    Dear James: 

    As the parent of a disabled son, now an adult, I bow deeply to your wanting to help your child as quickly as possible. I feel other BPNers with their up-to-date experience and/or knowledge will respond in more helpful ways. Much has changed & more is known (thank God) than when my son was growing up.

    However, I've been reading a book "In Pursuit Of Silence" by George Prochnik.  2010.  Prochnik learned from Dr. Michael Merzenich "a pioneer in the study of brain plasticity...that the entire auditory cortex of children may now be 'rewired for noise' in ways that have devastating implications for a host of language-related cognitive functions."  (pg. 234.) 

    Merzenich urges parents, caregivers to reconsider the wisdom in using white noise machines, fans, TV, etc as a way to help calm any infant, young child.  Why?  He asserts that continuous white noise, etc end up causing the child's native language to be 'noisy". That is, noise and language learning etc are mixed together.  And this mixing together is related to something I wish I had known while raising my son:" ...children raised in noisy environments have dramatically slower capacities to process language." (p. 235   .

      I'm only sharing this information out of concern-- I got the book from my Kensington library..Maybe this concern has been debunked in the last few years.  

    Your son is so very fortunate to have the parents he does. 

    Thanks for all the information fellow parents. We just finished evaluation and we are working on getting ABA ASAP. Hope it won't take too long to get the ball rolling!

  • Hi all,

    my 22 month old will start his Aba from next week. I'm extremely nervous. He's been assigned 20 hours/ week. I'm not sure what to expect . Even though my son has AsD,since he is too toung, there is no severity level.

    I'm sure this question has been asked repeatedly. 

    To every ASD parent here,  I would like to know:

    1. How has been the ABA journey?

    2. Since the therapy is starting at a very young age, have you seen  any recovery?

    From an anxious mother.

    Babe, you are in such great shape. You have an early diagnosis and early intervention. I'm sure you will get fantastic advice from other moms, I just want to pipe up with enthusiastic support for you and your kid. This is so great for your kid! 

    Hi!

    Great choice! I think depends on the provider I was very hesitant but we LOVE ABA my son has improve a lot his executive function he is 3.5 and he is asking more and more questions.

    I am not expecting recovery (since he is not sick), he is a very bright kid he is warm and has friends. ABA is helping him to be more conscious of his actions to use his words to express his feelings, desires and initiate play with his friend etc.

    I don’t know what goals are expected at that age. Do you have your goals settled?

    Thanks a lot for your response madfoot and Gemahc. Gemahc, my initial goal was to get the services started on time. I didn't wait for RCEB( didn't have a pleasant experience with them

    I think it is absolutely AWESOME that you got such an early diagnosis!  Your ABA provider will help you come up with goals for your child and they will help to educate you, too, so you can continue to help him stretch and grow...the good (and bad!) news about being an ASD parent is that you are your child's main therapist!  Read as much as possible.  An excellent book to start with is An Early Start for Your Child with Autism: Using Everyday Activities to Help Kids Connect, Communicate, and Learn by Rogers/Dawson/Vismara.

    Also check out Autism Speaks' 100 Day Kit for Newly Diagnosed Families:

    https://www.autismspeaks.org/family-services/tool-kits/100-day-kit

    We didn't end up doing ABA because it didn't seem to be the right fit for our now 5.5 year old who was diagnosed at age 3.  Instead we've been doing speech, social skills therapy and occupational therapy.

    I'm guessing you might have Kaiser since you got such an early diagnosis and ABA hours; you should get them to give you speech (SLP) and OT, too...and if you don't have Kaiser, you should still try to get these incredibly important therapies.

    Again, huge kudos to you and your child!

    Wishing your family all my best.

    I was exactly in your shoes two years ago! My daughter was diagnosed shortly after she turned two and I felt overwhelmed. We immediately started with speech therapy once per week and 30 hours of ABA therapy per week. It is tough accomodating so much therapy, and it can disrupt family life at times, but it is worth it. I will say that finding the right team is crucial. We switched ABA companies and therapists when we felt things weren’t working for our daughter. We are two years in, my daughter is now four, and we are happy with how things have progressed. My daughter has an awesome team of supportive therapists and she is thriving. She’s talking up a storm and her social skills have vastly improved. Results can vary, and ABA doesn’t work for every child/family, but it doesn’t hurt to try. Wishing you all the best!

    I wrote a post similar to yours when our son was diagnosed with ASD at just a few month shy of 3 yo. 

    We started with ABA through the East Bay Regional Center, and then at 3 he was assessed by school district.  They wanted to provide services in a contained special ed preschool that we felt wouldn’t work for our son. We fought them and we’re able to get them to pay for an ABA therapist to shadow him as an aide at his mainstream preschool (that he/we loved). This was one of the best decisions we ever made as it allowed him the opportunity to learn from and interact with “neurotypical” kids. 

    He averaged around 25 hours per week of ABA until he started Kindergarden. It was very helpful, but we had to adjust to having people in our home.  Our son still receives ABA after school, although we are now considering tapering down.  

    The other thing that made a big difference for our son is biomedical treatment.  I regret how resistant we were to this in the beginning, but I truly thought it was hocus pocus. That said, when we discovered that our son was having reactions to some foods (bright red cheeks, ears and meltdowns), his OT recommended that we see Dr Sanford Newmark at UCSF.  

    The first thing Dr Newmark did was have us do an elimination diet, during which we found he reacted to several foods. We removed them and he improved overnight.  We’ve never looked back.  Here are some websites and books I wish we had known about when we started our journey:   

    The Autism Revolution: Whole-Body Strategies for Making Life All It Can Be - Martha Herbert, MD, Harvard Medical School. 

    Talk About Curing Autism 

    https://tacanow.org/

    The Myth of Autism: How a Misunderstood Epidemic Is Destroying Our Children, Expanded and Revised Edition, Michael J Goldberg, MD

    Healing the New Childhood Epidemics: Autism, ADHD, Asthma, and Allergies: The Groundbreaking Program for the 4-A Disorders, Kenneth Bock, MD 

    Overcoming Autism:  Finding the Answers, Strategies, and Hope That Can Transform a Child's Life, Lynn Kern Koegel, PhD, UCSB 

    These are controversial from a mainstream medical perspective to be sure, but you should read and decide for yourself.  Several of the books above are available on Audible so I could listen while I was doing other things.  

    Fast forward to our son at 9 and 1/2 and he is now mainstreamed in public school and is doing well.  He still has issues, but as we address his underlying medical problems, he continues to improve.   Most importantly, he is a much happier kid. 

    You have reason for hope, especially given how young your son is. Best of luck!

  • We live in San Leandro and are currently approved for direct to services for my 6year old son and can’t find availability. Can you recommend your ABA provider?  Willing to think outside the box. Can you help?

    No responses received.

  • Hi there-

    im looking for a new Aba company for my son. Any recommendations? I'm also interested in rdi... has anyone worked with a Bay Area company with good results?

    Im also interested in floortime specialists who will come to the house as well... 

    thanks in advance!!

    No responses received.

My two year old was recently diagnosis with autism, and while his issues are different from your sons, I have learned a lot about the disorder and I'm wondering if you have had your son assessed for autism recently?  We recently started ABA (applied behavioral analysis) and can already see an improvement.  I am by no means a professional, but it might be worth getting him assessed by a professional (again) just to be sure. Good luck.

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Archived Q&A and Reviews


Questions 

ABA services for autistic 7-yr old in Berkeley

April 2013

We have a severely autistic 7-year-old son and are looking for ABA providers serving Berkeley. Currently we have about 15 hours per week of after-school ABA services, focussing on self-care, life skills, behavior management, socialization, and so on. We wish to continue these services when we move to Berkeley in June 2013. Our insurance company, Kaiser, recommended STE Consultants, BIA, CARD, or ABC, in that order. Does anyone have experience with these or any other ABA service providers? Thanks a lot! Mark


Hi! I sent you an email but, figured I should respond here in case you don't get it. I worked for BIA for years as a program manager and after having kids started working privately for families. BIA is a great organization. They are really supportive and create programs based on the child's needs specifically. They make it fun. It is amazing to see the progress happen. I think it works best if the parent is involved in the process and varies over the work they do into their daily life (e.g., generalization). That's when you see the most progress. Of course every families face challenges but with any program that will happen. Hilary and Deanne (the founders) are the best in the business. After my kids get a bit older I plan on going back. Please feel free to ask any questions. Good luck! Lindsay


We used the services of BIA for our son and we were very happy with them. Our son stopped receiving services almost three years ago now, but I credit BIA with making a huge positive difference in my son's life. I have also heard good things about STE Consultants, but I have never heard of the other two providers you mentioned. Anon


I highly recommend BIA. We worked with them for 3 years when my son was younger and I credit them for changing our lives completely. Feel free to contact me directly if you have any questions. Jill H


i'm a Marriage and Family Therapist and i see children on the Autism spectrum within the context of their relationships and family life. Over the past several years I've worked collaboratively with STE Consultants and i've been really pleased to work with them. They are very respectful of the parents' perspective and always welcome their input, and the folks i've worked with are very well trained and mostly awesome with the kids. I've seen them persevere with some incredibly difficult cases, with skill, dignity, and respect for the kids they serve. I highly recommend them! I also want to say that with the increse in diagnosed children combined with new legislation requiring insurance companies to pay for Autism treatment, i'd caution you about asking questions of your perspective providers. find out how much training their staff has! Best of Luck with your search! geri


ABA for 3 year old with autism?

Sept 2012

My 3 years old son was just diagnosed on the Autism Spectrum by Kaiser. Kaiser autism center suggested us to go for ABA therapy, so I did some research online about ABA; I like some of the ideas but don't really like the robot-liked system. I m just not sure on choosing the appropriate therapies, which can get the most beneficial on him since we already got late on being noticed of his autism. Also, my son is going to regular preschool for half day in Castro Valley, and he is learning from and making progress there, so I don't want to cut his school hour. The preschool teachers are saying my son is a strong imitator and he likes to watch the others kids playing; he just needs a lot of time to get used to one thing; once his speech catches up, his behavior issue should be better. Personally I agree with their opinion, but I don't want to give up any chance to help him. For sure he will go for speech program. So does anyone have any suggestion or experiences to share on the therapies besides than ABA, which would help with the tantrum and being in the community? Carrie


I was in your shoes about four years ago. My son was almost three when he was diagnosed with autism. He is now in a typical first grade class, has made some close friends, participates in sports, and is an overall happy kid. I cannot stress enough how important ABA was to our son and our family. We received funding for ABA through the Regional Center. If you haven't yet, you should contact them. Our ABA provider was BIA, and I highly recommend them (http://bia4autism.org/). It takes a big time commitment, and it can be stressful, but our son would not be doing as well as he is now without the many hours of therapy that he did. I also recommend speech and occupational therapy. In addition, we changed our son's diet to gluten free and casein free, and gave him certain supplements. We did all of these things consistently until he was five. After five, we reduced the therapies, but continued with the diet. Now at seven, my son goes to a group OT class, and still remains gluten free, for the most part. I've seen a few parents take a ''wait and see'' approach because they don't want to label their child or they don't feel the therapies are worth it, and I see that these children are really struggling years later because they were not put into the appropriate therapies earlier. It can be a scary and stressful journey, but it is so worth it when you see the positive results. Hopeful mom


Hi. I'm a special education teacher. If your child was diagnosed with autism then you should really go to the school district and request in writing that your child be evaluated for special education services. Once this evaluation has taken place and he qualifies for services - which he will if he has autism - the district is legally responsible for serving your son. Early intervention is absolutely key for children who have autism and teachers who are trained to work with such children should be working with your son - not just any preschool (no matter how exclusive) / daycare provider. That said, CVUSD has preschool for children who have disabilities. There isn't just one strategy that works best for any child so you need someone to work with your child who is studied in many techniques - a special ed teacher. I've taught older kids with autism and there is a huge difference between a child who received early intervention services from trained and certificated teachers and a child who did not. Please go to the district office asap. I hope this is helpful! M


Hi Carrie, I think you are doing the right thing to start on therapy as early as possible and to research different options. I do have experience with autistic children and would be happy to share with you. Kathy


ABA therapy and working full time and general life

June 2011

Our 2 year 4 month old son has not be diagnosed with anything, but has been receiving speech services for the 5 months and Infant Educator services for 2 months. A recent observation by a psychologist has resulted in a recommendation for ABA assessment and then therapy. The assessment is 15 hours a week plus 10 hours for parents and therapists. That's 3 hours a week one-on-one with our son. That seems like it's going to take over our life! We are feeling a little overwhelmed at this point especially given that both of us parents work full time. Any suggestions or ideas as to how to juggle all of this? thanks.


I hear you and can sympathize. My son (now 7) went through 1 year of the exact same ABA therapy you are talking about (through STE/RCEB?).

My 6 yr old received 1-to-1 services 3hrs/day for 1 solid year. I worked with a sr level therapist weekly for a year. he is now off that intense program but i still have weekly consultations to keep him on track. I use the strategies for my older son as well (9).

Before ABA my 6 yr old was having intense tantrums that were frankly frightening and totally out of control. He had severe OCD, anxiety, as well as his autistic/behavior issues. Now, OCD/anxiety are dramatically lessened, tantrums are minimal and much less severe and I've gotten control of his behaviors.

The bad - it is freaking exhausting! Other parents have absolutely NO idea what we go through. You have to stay on top of it almost in 5 minute increments throughout the day, every day, no break. I've learned ABA works only when parents are absolutely consistent. Once you start relaxing the strategies, the behaviors creep back up/get worse. It really is all about changing YOU so you can be more effective in dealing with your son.

The good-IT WORKS!!!!! Yes, its exhausting but not as exhausting as dealing with the behaviors BEFORE ABA. I'm a single mom with TWO special needs kids and I can manage it (though it is hard).

I have to constantly fine tune the strategies at least on a weekly basis. I have star charts up the ying yang! But it works for certain types of kids, including mine.

Here is an example: yesterday my younger son was with his babysitter. she said 'computer time is over. time to get off'. he went into meltdown mode - slowly creeping up to a level 10 tantrum. i heard it and came in the room. he was getting hysterical. PRE-ABA = we would have had a severe tantrum with kicking, scratching, clawing, biting for probably 30 minutes. POST ABA = i calmly said 'i will put the timer on for 1 minute then you will get off nicely'. i walked out of the room, put the timer on for 1 minute and he hopped off and said 'ok mom' and went to play in his room.

What have I learned? With my son, he needs to feel control. So by giving him 1 minute to get off, he feels in control of the decision to get off. Pre ABA I would have forced him like a mack truck to get off and totally clashed with him. It is that small of a fine tuning that totally avoided a meltdown. I give a little, he gets a little = we all win.

I would highly recommend doing ABA while your son is young and you can help him gain control over his actions. it gets way worse when trying to do this on older kids. You have a chance now to help him learn a better way to deal with his feelings/emotions. GOOD LUCK!! Been there, it DOES work


ABA is for children with autism. I'm curious about why it would be necessary if your son has not been diagnosed with anything? If your child does have autism then this program is absolutely in his best interest, regardless of the toll it might take on your life (in my opinion). On the other hand, if he doesn't, I don't know why it would be needed? At any rate, I had a home program at the intensity that you describe, for 2 years, and am happy to tell you about how it impacted our lives, if you decide to do it. I guess the question at this point is: Do YOU think intensive therapy is necessary? Jill


I have a 23-month-old son who was diagnosed with autism at 15 months. My son participates in 25 hours of ABA per week (plus PRT at Stanford) because the empirical research suggests that 25 hours a week is the minimum number of 1:1 ABA hours needed to effect positive change in children with autism or PDD-NOS. As 30-40 hours a week is really best, we are working towards this goal. Also, early intervention and parental involvement are key to successful outcomes, so we started ABA as soon as possible and are as engaged in his program as we can possibly be.

Let me be straight...All of this does takes over your life. Before I had my son I was a ph.d. level researcher. I knew I couldn't go back to FT work, so I took a PT job teaching and even that was tough. I spend most of every day fighting the regional center or insurance to get or keep services for my son, and when I am not taking calls or writing letters, I am participating in my son's 25-hour a week ABA program or taking him to Stanford for PRT (a type of ABA that teaches parents skills to increase their children's use of functional language). My husband has also had to make sacrifices, including taking a lot of vacation days to help out at home and participate in ABA at home and PRT at Stanford. I will add that I am currently 8 months pregnant and have spent my entire pregnancy stressing about my son and fighting for what he needs.

If ABA was recommended by a psychologist with expertise in working with young children with developmental delays, I would take her recommendation to heart and start ABA, ASAP. How involved you want to be may be your choice. Some parents have to work outside the home (for money or their sanity). Others of us are lucky enough to be able to stay home and participate in ABA more fully. Personally, I'd like to think my active participation in my son's program, keeps the quality of his care high, but there is no way to know for sure.

I dream of going back to work PT soon, but I have chosen to make my son's therapy a priority right now, as this is a critical period in his development. I do still believe that if you can set aside time for activities you enjoy that don't revolve around ABA, you may be happier. We don't have a handle on how to do that, yet, but we are working towards this goal. You might also consider getting on some of the local Yahoo listserves for parents of children with special needs (PPSNK, autisminterventionbayarea). anonymous


Our situation was similar. My son was assessed through RCEB for a 'speech delay' but I was concerned that he was autistic. They didn't give him an official diagnosis at that age, but after his evaluation, they recommended 25 hrs/week of ABA + speech therapy. They saw enough red flags for autism to get him into early intervention. (Later, at age three, he was diagnosed with high-functioning Autism.)

ABA turned him around, got him connecting and communicating with the world and people around him. We saw dramatic changes in his ability to communicate almost immediately. I was 'at home' with our other son who was about 5 mo's at the time. So the whole situation was intense. We had therapists in the home with us during all of his waking hours...but they were a pleasure to have around. I got used to it. I didn't get out a lot. I was glad I was home, because even though I wasn't actually participating on a daily basis (it's more 1-on-1 with the therapist), I totally 'got' the approach and could carry it into our home-life. (Things like this really only work when there's synergy with therapists and how the family works at home.)

You asked about working, though. Early intervention therapy is meant to happen ''in the least restrictive environment for the child''. So if your child is in full-time daycare, it happens there. We had about 4 months where it was happening in-home. Then he was at a preschool 2 mornings a week and the therapist was there with him. Then he started at a 4 day/week school and the therapist was with him there for another 2 months (until he turned 3).

We worked with STE Consultants (highly recommend). The thing I found most valuable was the weekly team meeting where all of the therapists and the clinical director got together to discuss progress. I was there for every meeting, asking questions, getting advice and insight, figuring out what to do in the home.

Here's what I would recommend to a working family. Every week, one of you takes a personal day and is at home to 'be around', observe or participate in the therapy. Make sure it's on the day of your team meeting. You'll feel involved. You don't have to be there every second, honestly. But on the flip side, I wouldn't want all of it happening while I was away, because it's so helpful for the parent. If you can't make a team meeting, arrange to call in.

It's such an important time in brain development, you'll see measurable improvements -- and this intensity level won't be forever. But it's worth it. Good luck. PS-6 months after our ABA wrapped up, I'm back at work full time. My son's in a OUSD preschool in the morning and 'our preschool' in the afternoons. - anon


Do you have experience with ABA treatment for autism?

April 2010

We're starting ABA (Applied Behavior Analysis) with our 2 year old son and I'm wondering what to expect and how to get the most out of this opportunity. Does anyone one out there have experience? It sounds a bit intense. We've been allotted up to 25 hours per week, in-home. He qualified for services through Regional Center East Bay. He has a severe speech delay and has delays in his social/emotional/play/motor to varying degrees as well. He may be on the high-functioning end of the Autism spectrum. We don't have a diagnosis yet.

I was blown away by how many hours it is. I just assumed that it would be once a week, like his speech therapy. But I guess this is what early intervention is all about. I'm eager to get started, but I don't really know what to expect. I'd love insight from anyone who has gone through it. Here my over-arching questions:


- We'll be working with STE Consultants. Anyone have experience with them?
- What is it like having therapists in the house all the time?
- Were you involved with the therapy, or was your child working one-on-one with the therapist? (Did you get to learn strategies to help/guide/teach your child?)
- Did they support your child in a day-care or pre-school setting? How did that work?
- How can we, as parents, help this early intervention to be as fruitful and successful as it can be?
- Is there anything that you know now that you wish you knew when you started off?
Thank you! Anonymous


Yep, that's the key to ABA, the intensity of it. We had a home program that lasted 2 years, 15 hours/week, and during that time we ''weren't allowed'' to take vacations or be gone for any extended period of time. I'm a little surprised RCEB has given you this service without an actual ASD diagnosis, but he's only 2, that's almost too young, still, to be diagnosed. It's good that you're starting early, though, the earlier you start, the better the prognosis.

- We worked with BIA, who I simply can't rave about enough, so I don't know anything about STE.

- You get used to having people in your house all the time. At first it was a little weird, and I did a lot of extra cleaning, but after a while they just became like family members and I was used to it. It helped that I adored all of the therapists we worked with (I'm still in touch with all of them on Facebook, 3 years later) and there was practically no turnover in the 2 years

- I was involved in the planning of the program but not with the actual carrying out of it. This is because when I'm in the room my son prefers to sit in my lap and snuggle and not do any work, so my presence was more of a hindrance than a help, that may not be the case for you. If it's a good program they will work with whatever you have to offer.

- We got classroom support, mostly in the form of evaluations and recommendations, and also IEP attendance (that's a whole other thing you don't have to deal with yet!)

- As for how you can help success, I would say just keep an open mind. These guys know what they're doing, and the first thing I learned about ABA was that it is ''counter-intuitive'' to what you think should work; a lot of it just went completely against my natural instincts as a parent, but that's kind of what autism does to you, it forces you to change your expectations about what kind of parent you thought you might be, because it's in charge, and not you.

- I don't think there's anything I know now that I wish I knew then, we were lucky that we had such a fantastic team and we saw immediate results. My suggestion for you, just beginning this autism journey, is to find a support group, either online or not (online support groups tend to fit your schedule better) because you're going to need the help and support of other parents who are where you are or have been where you are, to help get you through this. Good luck. Jill


I highly recommend getting in touch with Diane Hunter. She is a mom of an autistic son who knows a lot and is a great resource for everything that goes along with it. She is now working as a life coach for parents whose children have been diagnosed, she has an upcoming workshop that looks amazing, I just can't say enough about starting with Diane. Her website is www.AfterAutism.com. torie


I have experience as a nurse case manager for a set of twins who received ABA in a very tiny apartment! Yes, its intense, its a huge time commitment, and. . . the kids showed almost immediate benefit. The parents have challenges and this mom really stepped up to the plate! Good luck and enjoy learning about how much your child will grow. Nurseb


Our autistic son has been in ABA therapy for two years with CARD. He is beginning to use words to get what he wants, and his behavioral problems (screaming, banging his head, pica,etc.) started to improve within the first 3 months. I found from previous experience that the 25 hours a week (40 hours is best), is absolutely necessary.

It is not easy to have people in your house all the time, but you will become accustomed to it. Therapy can also be done on outings if the therapists are open to it.

If you want to make sure the ABA is successful, you must know what your child is working on and be sure to reinforce it. All will be for naught if you cave to temper tantrums, or it just seems like too much work to do it the ABA way. Nothing is worse than having to start over when the therapist arrives every day. Julie


ABA is a scientifically based therapy for children on the autism spectrum. To get yourself introduced to ABA therapy, it would be helpful to research a bit about the founder of ABA : Dr. Lovaas.

ABA is provided in a 1:1 setting, by a behavior tech (up to 2 or 3)/supervised by a senior consultant and is based on targets or goals in which data is collected to measure progress. The targets are typically based on an initial assessment. The targets, especially if these are regional center funded services, will focus on getting your child ready for the community - communication, potty training, behavior, eating, dressing and self help skills.

Studies have proven that a program of 25-40 hours per week is the most beneficial to young children r.

I have worked with STE on special education cases and have had the opportunity to work with many ABA providers across the state. I can only speak as a special education attorney and say they are excellent at what they do. To answer your specific questions:

1. Yes, parent training is always involved and you should ask STE how much, when and how you can learn.

2. Prepare your house for therapists and therapy. Have an area dedicated to ABA therapy it will definitely make the services go more smoothly.

3. STE and other ABA providers can support your child in preschool. Regional Center should be consulted and approve this service. However, by the time your child is 3, the school district will take over. Contact your preschool and talk with STE. The targets and goals (as well as the data) will be collected at the preschool site and the 1:1 behaviorist works with your child to contrive opportunities to socialize, communicate and follow the program.

4. As parent, the best thing to do is to stay on top of the program, join some autism parenting groups and read up on ABA. Get copies of data sheets (ask STE to provide them to you at the end of each week), start a binder and keep records. Let STE know that you would like some training (this is almost always part of the program) and how can you be involved.

5. Going forward:Get all of your providers to communicate with one another. Sounds like you may even want to ask Regional Center for more speech. If your providers have each others reports and records, they can capitalize on what the other is doing. Consistency and generalization across settings is key. Mandy


I am glad so many people have had good experiences with ABA, but I feel I most pose some cautions. I am a pediatric physical therapist with 5 years experience, 3 in a sensory integration clinic. I am also the parent of a beautiful almost 3 year old with sensory processing disorder who may/may not also be on the spectrum. I believe that any pediatric therapeutic intervention needs to be child directed (the child's interest, needs, wants, are the basis of which you build & structure your therapeutic intervention). Having said this, go with your gut, you are your child's strongest advocate & don't be afraid to voice concerns over something that bothers or troubles you regarding any therapeutic intervention. We were first referred to BIA. This resulted in 2 months of trauma for my son. They were extremely forceful, held him in place, ignored his sensory needs(he needs deep pressure, proprioceptive,& vestibular input in order to organize & focus), would consistently take away toys forcefully (desired & non desired) even when he was interested & learning from it. My child started having horrible tantrums, something he never had & which disappeared after we ended our association with BIA. The director also told me that if I ''would only agree to their methods'' that ''they would give me the gift of a typical child'' A statement I find offensive as both a clinician & a parent. We were then blessed to find Easter Seals, a hybrid of ABA that follows the Denver floor time model of intervention & is more child directed while implementing some of the ABA principles. Easter Seals in combination with occupational therapy at Suma Kids & speech therapy at Alta Bates has been a wonderful approach & our son has gone from 37 words to 150 words & short phrases, in addition to increased social interactions as his sensory needs are being met. I strongly urge you to have your child evaluated for Occupational Therapy by a sensory integration trained therapist. I am not familiar with your service providers for ABA, & they may be wonderful. I just felt I could not let everyone sing ABA's praises without giving you this cautionary note. ASD is just a label, what counts is your child's individual impairments/delays/difficulties & you must find the right intervention for your child. Please do not be afraid to question,or change interventions until you find the right fit. Best Wishes in your path to helping your child live his best life. Ann


STE has been working with my son since he was diagnosed a year and a half ago. We are thrilled with them and I'm glad to discuss with you. I don't have a copy of your original post to address your specific questions, but feel free to e-mail me. Best, Heather