Therapist for Child with Autism
Parent Q&A
I wrote a post similar to yours when our son was diagnosed with ASD at just a few month shy of 3 yo.
We started with ABA through the East Bay Regional Center, and then at 3 he was assessed by school district. They wanted to provide services in a contained special ed preschool that we felt wouldn’t work for our son. We fought them and we’re able to get them to pay for an ABA therapist to shadow him as an aide at his mainstream preschool (that he/we loved). This was one of the best decisions we ever made as it allowed him the opportunity to learn from and interact with “neurotypical” kids.
He averaged around 25 hours per week of ABA until he started Kindergarden. It was very helpful, but we had to adjust to having people in our home. Our son still receives ABA after school, although we are now considering tapering down.
The other thing that made a big difference for our son is biomedical treatment. I regret how resistant we were to this in the beginning, but I truly thought it was hocus pocus. That said, when we discovered that our son was having reactions to some foods (bright red cheeks, ears and meltdowns), his OT recommended that we see Dr Sanford Newmark at UCSF.
The first thing Dr Newmark did was have us do an elimination diet, during which we found he reacted to several foods. We removed them and he improved overnight. We’ve never looked back. Here are some websites and books I wish we had known about when we started our journey:
The Autism Revolution: Whole-Body Strategies for Making Life All It Can Be - Martha Herbert, MD, Harvard Medical School.
Talk About Curing Autism
The Myth of Autism: How a Misunderstood Epidemic Is Destroying Our Children, Expanded and Revised Edition, Michael J Goldberg, MD
Healing the New Childhood Epidemics: Autism, ADHD, Asthma, and Allergies: The Groundbreaking Program for the 4-A Disorders, Kenneth Bock, MD
Overcoming Autism: Finding the Answers, Strategies, and Hope That Can Transform a Child's Life, Lynn Kern Koegel, PhD, UCSB
These are controversial from a mainstream medical perspective to be sure, but you should read and decide for yourself. Several of the books above are available on Audible so I could listen while I was doing other things.
Fast forward to our son at 9 and 1/2 and he is now mainstreamed in public school and is doing well. He still has issues, but as we address his underlying medical problems, he continues to improve. Most importantly, he is a much happier kid.
You have reason for hope, especially given how young your son is. Best of luck!
I think it is absolutely AWESOME that you got such an early diagnosis! Your ABA provider will help you come up with goals for your child and they will help to educate you, too, so you can continue to help him stretch and grow...the good (and bad!) news about being an ASD parent is that you are your child's main therapist! Read as much as possible. An excellent book to start with is An Early Start for Your Child with Autism: Using Everyday Activities to Help Kids Connect, Communicate, and Learn by Rogers/Dawson/Vismara.
Also check out Autism Speaks' 100 Day Kit for Newly Diagnosed Families:
https://www.autismspeaks.org/family-services/tool-kits/100-day-kit
We didn't end up doing ABA because it didn't seem to be the right fit for our now 5.5 year old who was diagnosed at age 3. Instead we've been doing speech, social skills therapy and occupational therapy.
I'm guessing you might have Kaiser since you got such an early diagnosis and ABA hours; you should get them to give you speech (SLP) and OT, too...and if you don't have Kaiser, you should still try to get these incredibly important therapies.
Again, huge kudos to you and your child!
Wishing your family all my best.
Archived Q&A and Reviews
- Therapist for child's serious social skills issues
- Resources in Oakland Schools for 5-year-old with Asperger's
Therapist for child's serious social skills issues
May 2008
Someone I love dearly has a child who has an Asperger's Syndrome diagnosis. The boy is extremely high-functioning and characterized as a ''prodigy, a genius'' in the medical and scholastic literature on him (I know, I've seen it). But he is suffering and has serious social skills issues despite having worked with a local therapist over time. Looking for someone who is an expert in the field of Asperger's Syndrome, preferably in Berkeley or nearby. Thanks for assistance.
I would highly recommend Dr. Annette Blackman, a psychologist who works with children and young adults on the autism spectrum, especially those with Asperger's Syndrome. She is excellent! 1-925-323-8814.
You or your friend should give Nancy Chin at Step By Step a call. Nancy has extensive experience working with gifted children with learning disabilities, especially those on the autistic spectrum. Her contact # is 510-384-1909. Stu S
Resources in Oakland Schools for 5-year-old with Asperger's
Feb 2007
My 5 year old son who is a kindergartener in the Oakland School District just got diagnosed with Asperger's Disorder. The pscyhologist explained that the school is required by law to provide an aide, ''pragmatic speech'' through the speech therapy dept, ''group social skills group'' and occupational therapy. Has anyone else there been through the process of getting these resources for their Asperger's child in the Oakland school district??? Help! Thanks in advance!
I suggest you join the Special Needs Network at Yahoo groups: http://groups.yahoo.com/group/specialneedsnetwork/ They have members who are dealing with these issues and can offer you support and advice. I don't have any information about the Oakland School District, but I can tell you that my 16-year old with Asperger's is now full-time at Alameda High and doing very well. We will be visiting 4-year colleges very soon and planning his future education. Nancy
The school district is not required to specifically give your child things like ''pragmatic speech'' or an aide. They are required to provide your child with a free and appropriate education in the least restrictive environment, according to the IDEA. What that looks like is determined differently for each child. If you haven't done so already, the first thing you need to do is have your child assessed by the school district--they are required to do this free of charge. I'd make sure you get a psych eval, a sensory integration evaluation from an occupational therapist, a speech eval and an educational eval so you have a full picture. Once that's done, if the district agrees with the diagnosis, you will get an IEP--an Individualized Education Plan, that will be the contract that guides what services and accomodations your child gets in public school. Children with Aspergers usually do need pragmatic speech and/or social skills, but the district may not offer them-- you may have to ask for them and argue for them. Same goes for all other services--most children on the autistic spectrum have sensory issues and need occupational therapy, but again, the district may or may not offer it. Remember, they are trying to keep their costs down, so they're not going to leap to offer you services. You need to educate yourself about your child's needs and then ask for what you think he needs. In this sense, it is helpful to have a private psychologist to work with, someone who doesn't have a vested interest in keeping services to a minimum, to help guide you about services. There are a number of websites that can help you too--one of the best is tacanow.org. TACA is Talk About Curing Autism and has any number of resources for navigating the world you've entered. It is particularly focused in California. Finally, getting an aide is one of the hardest things to accomplish in public school, so I wouldn't count on it. And, speaking from experience, I can tell you that there are just as many cons to an aide as pros. If your child can function without one it is really better not to have one. At any rate, you have much to figure out and learn, but I promise you that there are many other parents out there ready to help you, and children with Aspergers are challenging and frustrating, and also an amazing blessing. Susan
My son goes to the CPMC Kalmanovitz Child Development Center in SF for OT and they have psychotherapists there. Feel free to DM me and I can share our experience.
Stanford Autism Center - https://www.stanfordchildrens.org/en/service/autism
Children's Health Council - www.chconline.org
Dr. Megan Allen - http://www.drmeganallen.com/
Dr. Jessica Hobson - https://familyguidanceandtherapy.com
Autism Center of Northern California - www.acnc.org
Whole Child - https://wholechildca.com/services/assesment.html
CPMC Kalmanovitz Child Development Center - https://www.sutterhealth.org/cpmc/services/pediatric/kalmanovitz-child-development-center-cpmc