Support for Pans/Pandas
In a recent reply to a question about therapeutic schools a member here mentioned a pans/pandas diagnosis. I am currently trying to help a local family navigate this syndrome with their teen. They are having trouble finding local doctors with experience treating pans/pandas and are struggling to get the medical support they need. Please let me know if anyone has information about supportive medical programs or providers in the area. Thanks so much!
[Moderator Note] See past advice on BPN about Pans/Pandas here: https://www.berkeleyparentsnetwork.org/recommend/pandas
Jul 16, 2018
Parent Replies
Hello!
I had responded about PANS/PANDAS. My son has PANS. It is helpful to find a Lyme Literate MD (LLMD) as they typically have the best background to aid in diagnosis and treatment. Many Integrative MDs can help as well. Amy Smith, NP in Mountain View is local. Hope this is helpful!
Jennifer
Sorry, one more thing: there is a Facebook support group that I’ve found very helpful: https://m.facebook.com/groups/189241844607935