Endocrinologist for 20 year old with severe Grave’s Disease
I am looking for a non-Kaiser endocrinologist, preferably one the East Bay, who will take an active role in managing my daughter’s Grave’s Disease (Hyperthyroid). She had a great doctor with Stanford Health but aged out. Her current doctor has sent her to hypo and dangerous levels of hyper. There is a two month wait for appointment and monitoring is only done by requesting a blood test (usually this is when it is way out of control). The poor management led her to have to drop her college classes this semester. Any suggestions are welcome and I will switch to Kaiser if there is someone there who will give her the attention she needs.
Oct 16, 2019
Parent Replies
I had my thyroid removed 10 years ago so I totally understand your frustration with having your daughter going hyper/hypo. I recently moved to the bay and started seeing Dr. Linfoot. So far he's been the most knowledgeable endo I've seen in my 10+ years of being treated for my thyroid. https://www.yelp.com/biz/john-a-linfoot-md-lafayette Happy to answer any questions you might have.
I’ve had graves for the past several years and seen a handful of doctors. I was recently at Stanford in Emeryville with Dr. Mani but left because she wouldn’t listen to my concerns or allow me to transfer to another doctor in the practice when requested. Because endocrine specialists are few and far between there aren’t many options and wait lists are long. Now I’m seeing Dr. Chakavorty in Sutter’s Dublin office and have had a good experience with her. They also allow you to transfer within the practice if you want to use someone different though all waitlists are long. Best of luck and when you find the right doctor stick with them!!
I see the best doctor for GD. She is really amazing. The downside is that she is at Stanford Hospital in Palo Alto. I think it is worth it to make it happen to get to her. Dr. Dosiou. She has seen me through 3 pregnancies. I really can't recommend her enough.
Endocrinologists are not easy to find, I know. I don't know if my endocrinologist specializes or has expertise in Graves Disease, but you could inquire. His name is Dr. Omar Murad, office phone is (510) 984-0286, and his office is right next to Alta Bates Hospital in Berkeley. He has a quiet demeanor, is attentive, and gives me more individual time than most doctors do. He also is really into follow up, scheduling every three months if something is going on. He will always have you do blood tests, and he is a believer in medication.
Hi- I've been seeing Grace Eng (https://stanfordhealthcare.org/doctors/e/grace-eng.html) through Stanford in Emeryville and she is fantastic. It's difficult to get an appointment with her but if you say it's urgent they might be able to see your daughter soon. I've heard the other endos in her practice are great as well.
I also Saw Dr. Murad one time and have heard great things about him- https://www.sutterhealth.org/find-doctor/dr-omar-m-murad.
I hope you find someone who is a strong fit for your daughter. Best of luck!
I saw Dr. Murad today and he said that yes, he works with Grave's Disease, and also he sees adults, not children. So he might be a fit for your daughter.