Parenting an Adult Child with Mental Illness

Parent Q&A

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  • We have a 23 year old daughter who has had a tough time over the past few years. As a young girl, she was generally well adjusted, happy, did well in school, although showed signs of emotional disregulation, ADHD, and learning differences. We sought out educational and mental health therapists and followed their recommendations. She now claims it made her feel like there was something wrong with her, that she is different and not as smart as classmates, was forced to work harder than everyone else because of our expectations and values.

    In her 1st year of college out of state she sought medication for ADHD. In her 2nd year she was medicated for bipolar disorder. In her 3rd year of college she contracted mononucleosis, dropped a demanding academic program and changed majors. In the start of her 4th year, she developed severe GI problems, and eventually was diagnosed with Celiac's disease. During that summer she was under the care of a functional medicine doctor (she was malnourished). Her physical health improved, but blood tests indicated a thyroid disorder, so she started on thyroid replacement meds.

    She went back to school in the fall 2020 for a 5th year with 60 credits needed to graduate. By spring when covid hit, and she decided that online learning didn't work for her. She dropped all her classes and came home to live and work part time. While her physical health was improving, her mental health issues continued. It was unclear which meds she was using but we learned she was self-medicating with cannabis regularly. She claims is the only thing that helps her (we are skeptical). 

    By early fall 2021, she decided to transfer to a new university 60 miles from home for a 6th year of college. We set her up with a therapist and psychiatrist at the new school. She is taking 3 classes and doing quite well in school. However, she continues to struggle with her mental health issues and continues to self medicate. She wants to take 2 classes in spring and get in a therapy program for eating disorders or similar program, which I know could be expensive.


    She has not been willing to let us be involved in talking to her therapist and psychiatrist, or in helping her find a program. She is 100% financially dependent on us, and while we understand she has mental health struggles, we really want to be more involved, especially since she routinely reprimands us for not understanding her situation especially when we try to problem solve instead of just be empathetic. 

    We are concerned about potential self-destructive behavior or damage to the relationship if we make too many demands on her. While we want her to get help, we have not demanded since we are paying for her entire lifestyle and medical care, that she allow us to talk with her therapist or psychiatrist to be more involved. We'd like her to get a part time job and contribute financially if she is only going to school part time. We have not demanded that she quit cannabis (which she is adamant helps) and we worry it is contributing to her problems. I know mental health issues are real and can be challenging, but sometimes it feels like they are an excuse to not take responsibility and to claim oneself as a victim of one's physiology. We really want to help her but not sure how demanding to be. Hoping someone has experience and advice.

    This poor young woman!  Kudos to her for hanging in there and pursuing her goals against such overwhelming odds.  Underneath all that trauma, she is a strong, determined person.  And kudos for you for supporting her through this.  As parents, it's hard to see your child suffer and hard not to want to fix it.  Having said this, you have zero rights to talk to her psychiatrist or therapist, even if you are paying for it.  It's hard, but you just need to be there for her, as you have been, without judgment.  It takes a lot of faith to let go and not try to manage their lives. She'll let go of cannibus if and when she's ready. She's right, you don't fully understand her--sometimes we can love them, but not see them.  Don't be an obstacle in her path to wellness and a full adult life.  She's made progress.  She's moving forward. At this point, in addition to backing off, you might join a support group so you can get some perspectives from other parents who've walked in your shoes.   You posted in BPN, so it seems you are moving in this direction anyway.  

    It is not easy and my experience is that a practical way to achieve some success is to focus on the main issue, i.e., define the goal of your intervention and getting specific results, then find the means to do so together with your child. Do not insist on the means without defining the goal. Also, there may be an underlying issue for so many problems she is having. I have heard stories about unreported rape during college years and the following trauma. College rape is a serious unreported issue.

    Dear Anon,

    My family has been in a similar situation with our 19-year-old daughter. She just today completed a PHP/IOP program at Alta Bates (Partial Hospitalization Program/Intensive Outpatient Program). I think it was helpful in several respects and although she is stabilized I have no idea what is next! We got the referral to this program from her psychiatrist and also the doctor that did a neuropsych evaluation last spring. The latter was performed by Rima Dolgoff-Kaspar at Berkeley Therapy Institute. 

    I wish I could offer any advise, I am on a similar path with my 2nd year college child. My child is very resistant to any support and lashing out in response to any attempt to help/support (unless it's financial or use of our car).  My understanding is that the black/white thinking and oppositional lens can be part of ADHD and hormones/moods for girls/women with ADHD, as can the resistance to treatment. The only think that is helping me manage through this process is working with a mentor for parents of kids/young adults for ADHD, Impact Parents, https://impactparents.com/help-for-parents/. They also have podcasts and a you tube channel. Please check them out. In addition I am working with my own therapist (my daughter points to the past family and individual therapy she had as a teen as being part of her problem now). Good luck to you and I will be following this thread hoping to hear how other parents manage similar issues.

    Please consider getting involved with NAMI (National Alliance in Mental Illness--.  There are family support groups --attended by others whose adult child is diagnosed with a mental illness. There is an 8 wk course "Family to Family" which we just completed:  it's very helpful. Ours was all on Zoom--and that's ok. It was moderated by 2 highly trained individuals; there were 8 families involved (in most cases, only the mother was there..but in our case both of us were happy to attend).   Here I'm assuming that the bipolar diagnosis you mention still applies.--- About cannabis:  my experience with my adult son, now in his 30's, is that cannabis, especially the THC part, was /is the worst thing for his bipolar.  It intensifies the mood swings.  His therapist warned him that he could go completely off his rocker. -- So he stopped seeing her & has gone deeper into vaping.  Good luck to you, and to all of us with loved ones diagnosed with a mental illness.

    To me it sounds like your daughter is in pretty good shape. She is in school now and doing well. She has run up against so many obstacles but she has repeatedly picked herself up and dusted herself off and started over again.  That's remarkable and you should be proud of her!  I have two kids who have ADHD and have always struggled with academics and life in general. One of them, who is currently finishing grad school, told me when he was around your daughter's age that he didn't think he could succeed at college unless he "took it slow." He asked us to help out financially so he could stop working and focus on college.  Since moving out at 18, he had worked various crappy jobs, had fun with his friends, and had spent years enrolling in community college classes and then fizzling out in the middle of the term. He had not finished high school and it didn't seem like he was going to finish college either. He had a terrible track record. So I was skeptical. But he very sincerely said that he was now motivated.  I agreed to pay school and rent as long as he didn't get below a C in any of his classes. He started out with just one class, and went on to ace all his classes at BCC, transferred to a UC where he aced all his classes there, and then went on to grad school where he's just about to get his MS, again all A's.  This is a kid who flunked most of his high school classes. He knew better than I did what he was capable of and what he needed to succeed, and he was right. My other ADHD child on the other hand, dropped out of college just before Covid hit and has made no effort to do anything at all. He is satisfied to say that he has no interest in anything and has no motivation to take classes or get a job. Hoping the therapy will help. It's very frustrating. 

    So ...  hang in there and give your daughter some space. It sounds like she's figuring out how to navigate and not doing badly at all but she still needs your support. Lots of kids out here in their 30's still need help from parents so don't give up yet!   Good luck!

  • My young adult daughter (25) who has been diagnosed with a mood disorder and has impulse control issues recently forged my name and cashed a check (aprox $1200). I have supported her by keeping a roof over her head because she has not been able to hold down a job and has a 4 year old. She refuses to take medication or get any help with her mental health issues and blames me her adoptive mother for all of her problems. She has applied for SSI and doesn't qualify.  In this latest episode when I asked her to give me the check (which she had already cashed) she blocked my car in a parking space in her apartment complex to prevent me from leaving. She then used her car to chase me to the freeway. I did write the forgery and theft up in a police report. I am looking for an attorney to help me set up visits  with my grandson, which is the primarily why I pay her rent. The other factor is I don't want her showing up on my doorstep (She lives in Sacramento) which she has threatened to do. 

    Thank you for any suggestions, 

    Deborah

    First of all, I have the greatest sympathy for you. Secondly, I have advice but you won't like it. Your child is walking all over you like a doormat. You need to set limits with this adult-child or she will just keep doing it for the rest of her life (and yours!). She is your child and you obviously love her and want to take care of her. But you need to teach her that she cannot treat you that way before it is too late, if it isn't already. Boundaries are important, especially for people who have trouble regulating their moods and behaviors. We went through this with our son and a wonderful therapist explained to us that he was engaging in this behavior because we were enabling him and letting him get away with it. In this case, you are also rewarding her for this bad behavior by paying her rent. What incentive does she have to stop abusing you...? She's getting love, support, and money out of it! So here is my advice: stop paying her rent. If you stop paying her rent, perhaps she will get the treatment she needs in order to support herself and start feeling more self-sufficient. (For what it's worth, I am not unsympathetic - my child also has a mood disorder, so I feel your pain.) If she shows up on your doorstep, call the police. It sounds awful, but we went through something similar with our son and it's the only way we were able to get him to stop his abusive behavior. You may need a lawyer, but you also need to step up as a parent in a new and really difficult way. I really feel for you and may the force be with you.

    Anon

  • Looking for counselor

    Dec 18, 2018

    Looking for help in adjusting to mental health decline in one grown child, and serious physical illness in another.  It has been a heartbreaking year and I’m spending lots of time helping care for (and reassure) grandkids caught by the turbulence.  

    Does anyone have a results-oriented, compassionate counselor ( for me) they are willing to share?

    thank you for helping,

    I'm sorry this has been a heartbreaking year for you. I do not have a counselor to recommend, but I can suggest family support groups through NAMI (National Alliance on Mental Illness). If the support group is not helpful to you directly, someone there may be able to recommend a counselor.

    https://www.nami.org/Find-Support/Family-Members-and-Caregivers

    I'm glad you're searching for ways to care for yourself. 

     A few people in my family have loved Two Chairs (in Oakland and San Francisco). They place you with an appropriate therapist based on your intake interview.

  • I am looking for a ‘case manager’ type therapist for my young adult son who has significant mental health issues and needs professional help to become more independent and responsible for his own well-being. He sees a therapist who provides specific treatment for his illness however I believe he would benefit from seeing a therapist/social worker one-on-one (i.e. not in a group at this time) who can help him on his day to day living, set short and longer-term goals, review with him how he spends his time and money, work on life skills and decision making.  He has OPTUM (formerly UBH) insurance and it would be great to find someone in network, preferable in Oakland, Berkeley, or Albany.

    You sound like a very loving and compassionate parent. I have looked into the type of service you are describing for my young adult child with similar issues and added substance misuse. One resource that was recommended to me is East Gate Mentoring (www.eastgatementoring.com).  Unfortunately, my young adult has refused all support, so I cannot speak to an experience with them, other than I had a couple of phone calls with Conor. I found him to be compassionate and insightful; he sounded experienced.

    Although farther from you, you might also reach out to Cindy Savelli (ccbs91 [at] gmail.com) who runs a Parents Helping Parents Anxiety and Mood Disorders Support Group in San Jose. She is a wealth of information, and I imagine could point you to resources in the east bay.

    Another option you might consider now or in the future is transitional independent living (https://www.ndfya.com/california/). I learned of this from an acquaintance who's young adult is there now. Her impressions are favorable.

    I'll follow this thread, as I look forward to hearing what others have to say so I'm ready with resources when my young adult is ready to accept support.

    Try contacting NAMI East Bay to network with other families who've dealt with this issue. NAMI stands for "National Alliance for the Mentally Ill" and it's a non-profit that helps the mentally ill and their family.

    http://www.namieastbay.org/

    Good luck!

  •  I don't know if this is the right forum for this question but I have a young adult daughter and a three-year-old grandson. My daughter has a mood disorder and has become increasingly demanding I have me regarding money.  She has full health coverage but refuses to go to get any medication mhelp.

     When My grandson was born I promised myself and the universe he would not be homeless. So I pay my daughters rent. I agreed to do this for two years and is now going on the third year. When my daughter  started to only be able to hold down entry-level jobs I became concerned about my grandson's welfare.  Now she is unable to even hold down entry level jobs. Now I am getting ready to retire and only want to help my  financially for another two years. I have tried to make a transition plan with her to no avail. She has completed high school and  certifications to become a medical assistant and  certifications to become a and phlebotomist. I paid for this when she was still only 19. She has no interest in doing either of these jobs

     It has become increasingly difficult for me to interact with my daughter, I am not really allowed to see my grandson without her demanding money or just refusing to let me see him. The amounts have gotten really outrageous I do want to continue to support her with regards to her apartment my question is, is there a person whose job it is to help you pay a bill for somebody who is so unstable they can't interact with you? Also since my daughter is adopted and clearly disabled mentally do I have any legal obligation to take care of her when she is threatening me and so unstable. Thank you so much

    You don't say how old your daughter is now, but she's over 19, since you mentioned that she had trained to be a medical assistant and a phlebotomist at that age.  My understanding is that since she was legally an adult at 18, you haven't been obligated to take care of her since then.  I have a troubled young adult daughter, too, and I know how difficult it is.  And you have a grandson whom you love and want to protect.  However, you lost me a bit when you implied that the fact that your daughter is adopted might ameliorate your responsibilities.  I'm an adoptive parent, too, and I am my daughter's mother forever, as any biological mother is.  Surely, when you are not distraught, you feel that, too.  You are under terrible stress; your daughter is unstable and using her son as a bargaining chip.  I wish you the best and, I hope someone else who responds to you will have concrete suggestions for attorneys, counselors, respite, etc.

    I'm sorry to hear about your mentally ill adult daughter.  That she uses your grandson as a pawn is very sad. I wish I could suggest something, someone to help..All I can offer is my understanding of your situation.  I have an adult son, who has seizures, is bipolar, with learning challenges. Unlike your daughter he doesn't ask for $, 'though we help him, very modestly each month, but he gets himself into messes that typically we have to bail him out of: For ex, a 'friend' borrowed his truck (which he no longer has) had a fender bender & in payment said he'd give truck a tune-up.  This guy messed up the radiator.  Son seems to have a lot of irresponsible" friends"  who take advantage of him one way or the other.  Yet he rarely blames them..Son is hungry for friends.

    You have no legal obligation to support a child who is 18 or older.  If you want to help support her, and to help support your grandson, you could consider some kind of trust arrangement.  You ask about someone whose job might be to pay bills for someone.  Well, you can appoint a third party to administer that trust -- but you typically have to pay them a fee.  It is a job, and you are paying their salary.  Talk to a lawyer about these options. It sounds like you don't have concerns about your grandson's safety or health and welfare right now, which is great, but it sounds like you are worried about your ability to see your grandson and that perhaps your daughter is only letting you see him if you pay?  One thing to mention is that grandparents can ask for court ordered visitation with grandchildren.  You have to prove certain things like a pre-existing relationship with your grandchild to get that order. But if worse comes to worse, its good to know that is out there.  Again, good to talk to a lawyer.

    So sorry for such a difficult situation.  You are being held hostage by your daughter, using your grandson for collateral.  It sounds as if she has a strong case for mental health disability.  Perhaps you could insist that she apply for disability and get evaluated, otherwise you are going to have to cut her off?  That way, she would get a caseworker and the help that she seems to need.  You may have to follow through with losing your grandson for awhile if she refuses.  In addition, if you ever feel that he is in danger, you must be strong enough to call Child Protective Services.  You can even be proactive about it, and let them know that you are a caring option should he ever have to temporarily be removed from her custody.  

    As a retiree, you cannot continue to jeopardize your security in order to allow her to not get the help that she needs.  She is an adult.  No matter what her situation is, she is legally responsible for it, not you.  You have no financial obligation to her at all.  There is a public safety net for this.  Another good resource is dialing "211."  They can help connect her to all kinds of public resources.

    You might want to contact NAMI. They have some Bay Area Chapters. Then you could talk about this with people in similar situations.

    https://www.nami.org/