Concussions
Parent Q&A
Archived Q&A and Reviews
Post-concussion syndrome
Sept 2010
Hello, I was in a car accident about a month ago and am still suffering from post-concussion syndrome. (I was rear-ended coming off the freeway - I did not hit my head but had major whiplash.) I am pretty out of commission with total lack of energy, memory problems and problems with cognitive function. I am seeing a cranial sacral therapist, chiropractor and accupuncturist. But aside from brain rest, there really is no treatment. It can take weeks to months to get over this. I would like to hear from someone who has been through this before (who is now over it). I have never met or talked to anyone who has been through this. Thanks, M
A friend of ours, Jane McGonigal, had post-concussion syndrome and turned her recovery process into an amazing chronic illness/injury game called Super Better. She is a game designer by trade, and the results were remarkable - she totally destroyed her concussion symptoms. Here's her ignite topic on the subject: http://www.youtube.com/watch?v=ZztLac0Q1EI&feature=player_embedded And here is her blog post outlining the process: http://blog.avantgame.com/2009/09/super-better-or-how-to-turn-recovery.html The game includes ways to recruit your family or friends to help, fight your symptoms, limit suffering, keep positive, and move forward with recovery. Best of luck. Jess L.
Hi, I saw your post and can relate for a couple of reasons. I had a major concusion as a child that took a long time to fully recover from. When you receive trauma to the brain stem, either through impact or some form of stress like a whiplash, you can have lasting symptoms due to the inflamation of the brain stem. Even after healing physically it may seem that things are not as they used to be. Symptoms generally get better over time, but not always. Symptoms are wide ranging. Your sensory systems are processed in this part of the brain, so it makes sense that things may seem different as this is how you relate with the physical world. The therapies that you mentioned have been effective for some people and I fully understand your frustration for something more. bryan
Pre-teen with post-concussion syndrome
Feb 2009
My daughter is 12 and is suffering horribly from post concussion syndrome (severe CONSTANT headache that lasts for months) from a head injury last November. No medicine seems to help make it go away. After many doctor visits and a diagnosis that in time the headaches will fade we are now hoping to find someone who may have suffered the same condition so that we can learn more. It would also be great if my daughter could talk to someone who has been through this and has come out of it so she know it WILL end. We are looking for hope. Please let me know if you have any experiences to share and please pass this on to anyone you can think of. Thank you so so much k.
Sounds like the concussion caused migraine. You may be able to reduce pain by avoiding migraine triggers like bright lights, perfume, air fresheners, natural gas, chocolate, etc. More info here: http://www.relieve-migraine-headache.com/migraine-triggers.html anon
Hi Sean,
I'm so sorry that you and your son are going through this. I've had 13 concussions in 10 years, four of them leading to post-concussion syndrome lasting about 3 months each time, but I'm also in a higher risk category (woman 40+) for lingering symptoms. I feel mostly recovered now (just can't do back-to-back online meetings, but then probably no one should do that anyway).
I didn't try CBT. However, I found a free support group, facilitated by a great neuropsychologist, that helped me tremendously with developing coping strategies. It met on Pill Hill, then I heard it was on Zoom during the pandemic. I still keep in touch with a friend I made there.
From the website:
"The Brain Injury Life Skills Group provides a supportive environment and education for individuals with brain injuries to work through feelings of isolation, confusion and despair. The group provides strategies for dealing with memory loss, decreased attention and concentration, anger and depression, communication and social skills, emotional stress and isolation."
Best wishes for a resilient recovery,
Anna